CULTEC, Inc. Supported Charities
CULTEC, Inc. supports and raises funds to for medical research for Vanishing White Matter (VWM), an extremely rare degenerative brain disease by working with VWM Families Foundation and their young friend and patient eleven-year-old Sam Buck (www.facebook.com/SamVsVWM) of Greenwich, CT. Sam is one of only approximately 250 known cases worldwide that suffer from the disease. Buck was diagnosed at 2-years-old with VWM, a rare condition that destroys myelin, the brain’s white matter. In doing so, it permanently affects the transmission of brain signals to the rest of the body. Currently, there is no known cure for VWM.
There are only two VWM research projects in the world, one in Tel Aviv run by Professor Orna Elroy-Stein and the other in Amsterdam run by Dr. Marjo van der Knaap. Vanishing White Matter disease (VWM) is under the umbrella of Leukodystrophy. Since it is so rare there are no public research funds for this disease. Medical research for extremely rare diseases is often funded by friends and relatives of patients suffering from the disease due to the financial outlays required by universities and pharmaceutical companies to research and develop cures that would only benefit a small pool of individuals. The VWM Families Foundation (www.vwmff.org) was created to support awareness, research efforts, and families suffering from VWM and is a registered 501(c)(3) charitable organization.
St. Jude’s Children’s Hospital
CULTEC has been the presenting sponsor for the Connecticut St. Jude Walk/Run to End Childhood Cancer since 2011. In addition to sponsoring the walk, we also create and hold our own fundraising events throughout the year to benefit St. Jude Children’s Research Hospital.
When you purchase our products, you are donating to St. Jude. We are able to give back and help others because of your business and continued support. We don’t take that for granted.
Families never receive a bill. Treatments invented at St. Jude have helped push the overall childhood cancer survival rate from 20% to more than 80%. St. Jude freely shares the discoveries it makes, and every child saved at St. Jude means doctors and scientists worldwide can use that knowledge to save thousands of more children.
More than 75% of operating costs must come from generous donors.
It will cost approximately $1 billion to operate St. Jude this year.